#TalkToMeAboutLupusTrials with Al Roy, Lupus Research Alliance (Video)

A few weeks ago, I wrote a blog post celebrating our partners and announcing that, in the coming weeks, we will be sharing their work more widely. It is my pleasure today to share our first partner feature: Lupus Research Alliance.

Lupus Research Alliance is dedicated to finding better treatments and ultimately preventing and curing systemic lupus erythematosus (SLE), a debilitating autoimmune disease, by supporting medical research.

Earlier this week, I had the pleasure of speaking with Al Roy, Executive Director of Lupus Clinical Investigators Network (LuCIN), an initiative of Lupus Research Alliance. Al shared his thoughts on the importance of medical research for people living with lupus and how patients can be involved every step of the way.

Here are a few key takeaways:

  • There has been one new treatment approved for lupus during the last 60 years. To move the needle, it is critical that people living with lupus be active in their treatment and participate in research.
  • More than ever, researchers and the FDA are looking for patient input on drug development – from identifying priorities, to bringing new treatments to market. To get involved, visit www.lupustrials.org.
  • Any time is a good time for a lupus patient to consider a clinical trial. New scientific breakthroughs are allowing doctors and researchers to take a more tailored approach to treating individuals’ lupus symptoms. Expect to see more of this precision medicine approach moving forward.

To watch the whole conversations, click on the video below. If you have questions you would like answered, please Tweet us @antidote_me and use #TalkToMeAboutLupusTrials. You can also submit your questions to Lindsey directly by email: lindsey@antidote.me.