For Clinical Trials Day, A Celebration of Patient Stories

You may have noticed that for the past several weeks, we’ve been sharing quite a few patient, researcher, and partner stories here at Antidote. That’s because we believe that accelerating medical research is more than clinical trial matching; patients also need to be educated on the importance of research and inspired to take part. And who better to do that than other patients?

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Cures for All of Us: Lupus Patient and Clinical Trial Volunteer on the Frontlines for Diversity in Research

In the end, it was vanity that brought Shanelle Gabriel to the doctor who diagnosed her lupus. At least that’s how she tells it.

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When Extraordinary Things Happen to Ordinary People: How Storytelling Helped One Man Overcome Tragedy

I was sitting in the balcony seats in the Opera House at the John F. Kennedy Center for the Performing Arts when I first heard Ed Gavagan tell his story. If you’ve watched the Kennedy Center Honors on TV, these seats are the ones reserved for cultural icons — musical legends, film and stage royalty. Extraordinary people. It was quite a humbling spot for an ordinary person like me, but since I was working the show, and had a few minutes to rest, I snuck up to the VIP seats to watch one of the speaker sessions. On a stage where some of the world’s best have played, sung, and acted, a man named Ed Gavagan took the stage.

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And on Mondays They Dance: Love in the Face of Alzheimer's

It all started with a phone call. Sandy, in tears, called Ira, her husband of over 30 years. She told him that she couldn’t find the Pilates studio where she practiced for years. It was a trip she had taken from their apartment in New York City countless times. The following week, they made an appointment with a neurologist. Soon after, Sandy would be given a diagnosis of mild cognitive impairment. And several years later, a diagnosis of Alzheimer’s disease.

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May 2018: Lupus Research Round-Up

May is Lupus Awareness Month. In the United States, 1.5 million people, the majority of them young women, live with a form of lupus. Symptoms of the autoimmune disease vary, but can include pain, extreme fatigue, and severe rashes. Lupus can affect every organ of the body, including the heart, lungs, kidneys, or brain.

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The Search for an Alzheimer’s Turning Point: Powerful lessons in a new documentary about a failed Alzheimer's trial

With a long line of disappointments in failed clinical trials, the last few years have not been good ones for drug development in Alzheimer’s disease. TURNING POINT is a documentary, produced in conjunction with BrightFocus Foundation, that follows the journey of researchers and patients working together on a trial for a new Alzheimer’s drug. The drug solanezumab, investigated by Eli Lilly & Co., looked promising in Phase 1 and Phase 2 trials, but in a crushing blow, failed to meet its primary endpoint in Phase 3. We sat down with the film’s director, James Keach, to discuss how all medical research is a story without an ending — but one which drives hope and provides the opportunity for all involved to leave a legacy.

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What Is the Patient Recruitment Process for Clinical Trials?

In the clinical trial patient recruitment process, sponsors, sites, or recruitment companies look for ways to connect with patients who may be eligible for their trial. It's a multi-step process that begins with thorough research around the patient population and the creation of a tailored outreach plan.

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Meet Five Mothers of Medical Research

The aim of medical research is to drive the development of new treatments and cures for diseases. But how are priorities set? Why do some diseases receive more funding for research than others?

The answer, in part, is through the work of health advocates who lobby Congress for government funding and establish foundations of their own to fund research studies.

Today we celebrate five mothers who embody the saying “necessity is the mother of invention.” These amazing women have played a key role in accelerating medical research not because of their work in a lab or a hospital, but through advocacy for their children.

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5 Tips for Clinical Trial Site Selection

Clinical trial site selection is an important step that can help prevent delays and other challenges once your trial is up and running. It also tends to be a rather burdensome step: Today, it takes an average of 31.4 weeks from site identification to the completion of the study start-up phase, which is one month longer than the average duration observed 10 years ago, according to a report from the Tufts Center for the Study of Drug Development (CSDD).

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What It's Like to Participate in Clinical Trials for Cystic Fibrosis

There are currently 271,677 research studies in all 50 states and in 203 countries looking for volunteers. In a CISCRP survey, 75% of those surveyed (n=8,857) were either somewhat or very willing to consider clinical trial participation. But if you've never participated in a trial, it can be hard to imagine what the reality of taking part looks like.

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