COVID-19 resources from our partner network

This page will be updated as partners send us their resources.

The outbreak of COVID-19 has shaken up many lives, businesses, and governments. The medical community is focused on allocating resources and finding vaccines and treatments for COVID-19. We asked our partner network — 300+ health nonprofits, patient bloggers, publishers, patient technology companies, and other healthcare leaders committed to research progress — to share resources with us that they’re sharing with their communities.

Vaccines

• Precision Vaccinations has created CoronavirusToday. CoronavirusToday is a leading publisher of fact-checked news regarding the SARS-CoV-2 virus and the disease it causes, COVID-19. By integrating vaccine developments, diagnostic tests and therapeutic medication innovations, CoronavirusToday is meeting the information needs of consumers worldwide. "We launched CoronavirusToday in early January, as the outbreak expanded throughout China and then around the globe," said Karen Hackett, President of Precision Vaccinations.

Asthma

• Allergy & Asthma Network’s COVID-19 resources page includes:
  • A detailed infographic on the differences between COVID-19, allergies, and the flu.
  • A list of questions regarding COVID-19 (novel coronavirus) that people asked during the “Distinguishing the Difference: COVID-19 vs. Allergies vs. Flu” webinar on March 17.
  • Information about latex allergies and COVID-19.

Bladder Cancer

• Crush It For Curtis Foundation For Bladder Cancer Advocacy has a blog titled, "Bladder Cancer and COVID-19 Resources", which lists trusted resources for their community to reference.

Cognitive disorders/Alzheimer’s disease

• On LinkedIn, Stacy Haller, President & CEO of BrightFocus, passed along important information about Covid-19 for families impacted by Alzheimer’s disease, glaucoma, and macular degeneration.
• BrightFocus has also created a hub with regular COVID-19 updates.

Guillain-Barré Syndrome

• The GBS/CIDP Foundation International is committed to providing information, answers to your questions, and updates as they are made available. They’ve created a section on their website called “COVID-19 Updates” with resources.

Headaches and Migraines

• The National Headache Foundation have developed several videos, podcasts, and other resources relating to headaches and COVID-19:
  • Dr. Vincent Martin and Dr. Lindsay Weitzel tackle these important questions regarding COVID-19 and migraine & headache disorders: Does the presence of migraine disease make us more prone to coronavirus or other viral illness? Why do we feel so awful when we get sick? Do any of the medications we take put us more at risk? What can we do to limit our exposure yet ensure continuity of our headache/migraine care? How do we combat anxiety etc while we are stuck at home?
  In celebration of Clinical Trials Week, Dr. Lindsay Weitzel talks to Dr. Tim Smith talk about the
  . Will we see delays in the approval and release of some of our long-awaited migraine medications?
  • Dr. Mark Green talks about migraine disease and COVID-19.

Kidney Diseases

• The American Kidney Fund is supplying regular coronavirus updates, blog content, videos, and resources to its community:
  • COVID-19 myths vs. facts
  • Coronavirus (COVID-19) FAQs for kidney patients
  • How COVID-19 is Affecting Transplants
  • It’s not just about you: Social distancing for immunocompromised people during coronavirus

Lung Cancer

• The Go2 Foundation for Lung Cancer set up a hub on their website called “Coronavirus and Lung Cancer,” which is full of resources for patients, caregivers, and providers. On March 17, they hosted a special Lung Cancer Living Room focused on coronavirus and what it means for the lung cancer community. The organization has also released several relevant blogs, including:
  • Diversion in Isolating Times
  • Q&A with Dr. Brendon Stiles: COVID-19 and Surgery
  • COVID-19 Policy Efforts – An Update From Leadership
• The Lung Cancer Foundation of American (LCFA) is updating this page on Mondays with information on coronavirus and lung cancer that is produced by a joint committee of lung cancer advocates. In addition, LCFA has produced two podcasts on coronavirus and lung cancer:
  • Coronavirus and lung cancer: What you need to know
  • Coronavirus and lung cancer: Hear what lung cancer patients have to say

Lupus

• The Lupus Research Alliance hosted a live webcast on April 2, 2020, titled “Lupus and COVID-19: What You Need to Know.” The webcast addressed the most frequently asked questions doctors are hearing from people with lupus, put the hydroxychloroquine shortage into perspective, and highlighted LRA actions on behalf of the community.

• The Lupus Foundation of America has a hub on their site with up-to-date information on the coronavirus outbreak for people with lupus, including the latest updates, frequently answered questions from their health educators, and an informative video Q&A with Dr. Ashira Blazer, Rheumatologist at New York University's Langone Medical Center, and a member of LFA’s multidisciplinary expert Medical-Scientific Advisory Council.

Melanoma

• Melanoma Research Alliance shared a blog from the National Cancer Institute titled “Coronavirus: What People with Cancer Should Know”. The article answers key questions for people with cancer worried about coronavirus.

Mental Health

• The National Alliance on Mental Illness (NAMI) has an extensive COVID-19 information and resources hub. NAMI's COVID-19 Resource and Information Guide covers an array of topics as they relate to mental illness. They also have a concise guide on working from home, which breaks down tips and tactics for managing your employees, and your own, mental health.

Multiple Sclerosis (MS)

• MSAA's hub, “The Coronavirus and MS”, is regularly updated with relevant content about COVID-19 (overview, spread, and how to stay healthy) coupled with symptoms and special considerations for individuals with MS. Here you can also find information and links to MSAA's webinars (eight of them to date), a survey project for people with MS, and – among other resources – a COVID-19 and MS Pathfinder tool to help navigate through the many issues associated with the coronavirus and the MS community.
• On March 30, 2020, MSAA’s Chief Medical Officer Barry Hendin, MD and the Chair of MSAA’s Healthcare Advisory Council Carrie Hersh, DO, MSc, hosted a one-hour program, “What You Need to Know About COVID-19 and MS – Program 1,” that offers a comprehensive understanding of the coronavirus. He addresses many of the MS community’s most pressing concerns, including the risk of infection, uncertainty of maintaining a disease-modifying therapy, what to do if coronavirus symptoms are suspected, and more.
• The MS Views and News Learning Channel provides education, advocacy and services to empower and enhance the quality of life of the MS community. In wake of COVID-19, they’ve uploaded a few informational COVID-19 videos that pertain to the MS community:
  • Coronavirus (COVID-19), Multiple Sclerosis and You
  • MS Views LIVE presents MS & Wellness / COVID-19 updates with Annette Okai, MD

Prostate Cancer

• Malecare has a comprehensive page, "COVID-19 and Prostate Cancer," with many resources:
  • COVID-19 and Grocery Shopping
  • COVID-10 Curious Questions
  • Social Distancing and COVID-19

Type 1 Diabetes

• JDRF presents, “Coronavirus and Type 1 Diabetes: What You Need to Know”, where they share the latest information and recommendations from the experts for people with type 1 diabetes. JDRF is also sharing blog content about type 1 diabetes and the coronavirus:
  • Life with T1D in Quarantine
  • Talking to an Expert: COVID-19’s Impact on Cures Research
  • Answering Your Questions on Coronavirus
• The College Diabetes Network created a few resources for their network:
  • Virtual events
  • A one-page PDF related to finishing courses at home
  • A communications agreement for parents/caregivers and students