Rare Disease Day: Sometimes, Pulmonary Hypertension is the Right Diagnosis
Pulmonary hypertension (PH) is a type of high blood pressure in the lungs. A rare disease, PH is often misdiagnosed as asthma or COPD. Unfortunately, delays in diagnosis mean delays in treatment; sometimes, patients aren't diagnosed until they're in late stage disease – and by then, they have limited options.
This Rare Disease Day, our partner phaware global association and PHA Canada are focusing on the importance of early detection for PH. Please watch and share the below videos and help spread the word in the medical community that sometimes, PH is the right diagnosis for patients.
Early Diagnosis in Pediatric Pulmonary Hypertension - Angela Bates, MD
The Importance of Early Diagnosis - John Granton, MD
Is CTEPH Difficult to Diagnose? - Marc de Perrot, MD
If you'd like more information and resources on PH, phaware also hosts a podcast focused on raising awareness of pulmonary hypertension. They talk with patients, doctors, and researchers about living with PH and how we can reach better treatments and cures for the condition.